History of research projects and cooperative projects
(Liste der wissenschaftlichen und kooperativen Projekte)
| Project no.
(Projekt Nr.) |
Project
(Projekt) |
Status
(Status) |
Type, Partner
(Art, Partner) |
Year
(Jahr) |
Key parameters
(Schlüsselparameter) |
Type of analysis
(Art der Auswertung) |
Publication
(Veröffentlichung) |
| 1 | Fate of extranodal MCL | Active | Academic, FIL, EMCL-Verein | 2016 + | Extranodal manifestation | Patient level | |
| 2 | Use of Lenalidomide in MCL treatment | Closed | Entity, Celgene | 2017 + | Number of patients treated with Lenalidomide for MCL | Aggregated, Contact to treatment centers using drug | |
| 3 | Treatment trends in MCL | Completed | Entity, Janssen | 2019 + | Aggregated | ||
| 4 | SCHOLAR 2: Ibrutinib Failure: Fate and health care utilization | Completed | Entity, Gilead | 2019 – 2021 | Outcome after BTKi-failure, Health care utilization | Aggregated, individual if indispensable | DOI: 10.1111/bjh.18519 |
| 5 | Prognosis of patients with Mantle Cell Lymphoma – Covid19 | Completed, follow up | None | 2022 | Outcome of Covid-19- in patients with mantle cell lymphoma | Internal analysis | DOI: 10.1097/HS9.0000000000000711 |
| 6 | Retrospective analysis of real-world treatment patterns in Mantle Cell Lymphoma patients in Germany | Active | AbbVie | 2022 | Aggregated | ||
| 7 | Retrospective database research of real-world treatment patterns in Mantle Cell Lymphoma (MCL) patients in Germany, Italy and Europe | Active | Janssen | 2022 | Aggregated | ||
| 8 | Fate of BTK-failures | Active | Lilly | 2022 | Aggregated | ||
| 9 | Late POD | Active | FIL, Visco | 2022 | Patients with positive disease course – characteristics | Patient level |
List of third countries to which data is transferred
(Liste der Drittländer, in die Übermittlungen stattfinden)
| Participating Countries
(Teilnehmende Länder) |
Data protection rules
(Datenschutzbestimmung) |
Data entry (Datenerhebung) |
Retrieval of own data (Erhalt eigener Daten) |
Transfer of data (Datentransfer) |
| Austria | DSGVO or equivalent |
X |
X |
X |
| Croatia | DSGVO or equivalent |
X |
X |
X |
| Egypt | no |
X |
X |
|
| Germany | DSGVO or equivalent |
X |
X |
X |
| Ireland | DSGVO or equivalent |
X |
X |
X |
| Italy | DSGVO or equivalent |
X |
X |
X |
| Netherlands | DSGVO or equivalent |
X |
X |
X |
| Poland | DSGVO or equivalent |
X |
X |
X |
| Portugal | DSGVO or equivalent |
X |
X |
X |
| Spain | DSGVO or equivalent |
X |
X |
X |
| Switzerland | Adequacy decision |
X |
X |
X |